The Organ My Baby Needs Is Inside Me
Description
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For this week's episode of the podcast, Lucy speaks to Elle Daniel who is waiting to be the donor of some of her liver to her daughter who is 19 months old. Elle's daughter has a very rare version of a rare condition called Congenital Disorders of Glycosylation (CDG).
To find out more about Go Rare, mentioned in the podcast, go to https://www.goraredisease.org
You can find out more about CDG here
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