Kristy McCracken is an advocate and patient of an x-linked condition in the Urea Cycle Disorder family. Her official diagnosis is Ornithine Transcarbamylase deficiency, commonly referred to as OTC.  Kristy is a member of many patient organizations for UCD and rare diseases and her biggest passion is being a mentor for those newly diagnosed or going through their own journey. Kristy terminated a pregnancy in 2017 after genetic testing confirmed it was a male with OTC and after concluding that her own life was at risk if the pregnancy continued. Kristy has since become a mother through adoption and is open with the entire experience. Her goal is to help other carriers and female patients never feel alone in this journey of rare disease and x-linked conditions.
As a disclaimer, this podcast series features sensitive topics. Understand that the opinions and topics do not express or represent the organizations personal feelings on any matter but are here to solely share the guest speaker's journey and life's experiences. These opinions and stories are theirs and theirs alone.