A Journey of Connection: Understanding Shared Decision-Making with Patients, Caregivers, and Providers

What does shared decision-making really mean for those living with cancer and chronic diseases? To answer that, we embarked on a year-long journey—traveling to Ruleville, Mississippi, Richmond, Virginia, and Los Angeles, California—to co-create workshops that brought together patients, caregivers, and providers. Along the way, we listened, learned, and gained invaluable insights into how people navigate their health decisions.

This journey wasn’t just about gathering data—it was about building authentic connections with individuals who shared their stories, wisdom, and experiences. We explored the deep histories that shape their healthcare choices, and uncovered the profound ways they weigh and make decisions about their lives and health.

Join us as we relive these powerful moments, reflect on the lessons learned, and share the meaningful stories that highlight what really matters when it comes to shared decision-making. It’s a conversation that sheds light on the complexities of healthcare choices, the importance of trust, and the resilience of the human spirit.

This work is a part of Patient Advocate Foundation's Shared Decision-Making at Critical Points in a Long Illness Journey, a project made possible in part by support from the Danaher Foundation.