Victoria Gabb - Patient and Public Involvement & Engagement in the MCI Core Outcomes Study

Update: 2025-08-04

Description

Victoria Gabb, narrates her blog written for the Dementia Researcher website.

In this blog, Victoria Gabb reflects on her experience of embedding patient and public involvement and engagement (PPIE) into the MCI Core Outcomes Study. She describes the challenges and successes of involving people with lived experience throughout the research process, from shaping research questions to co-developing study materials and ensuring more inclusive design. The blog highlights the broader value of PPIE in dementia research, such as improving communication, boosting inclusion, and building meaningful relationships with communities. It also stresses the need for researchers to report and recognise PPIE contributions more effectively in publications.

Find the original text, and narration here on our website.

https://www.dementiaresearcher.nihr.ac.uk/blog-mci-core-outcomes-study-patient-public-involvement/

Victoria Gabb is a Senior Research Associate in Sleep & Dementia Neuroscience at University of Bristol. Victoria is working on her PhD through publication and she is currently working on an important project to develop ‘Core Outcomes’ for Mild Cognitive Impairment. Her blogs on dementia researcher will be a way of sharing the progress of her work, to improve transparency, share the process and as a way to involve others - sharing the work, the process, and life in the pursuit of research.

Enjoy listening? We're always looking for new bloggers, drop us a line. http://www.dementiaresearcher.nihr.ac.uk

This podcast is brought to you in association with Alzheimer's Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia, who we thank for their ongoing support.