What is Aicardi Goutieres Syndrome? What treatment is out there? Meet Dr. Jonathan D. Santoro, MD - Medical Director, Neuroimmunology and Demyelinating Disorders Program and Attending Physician, Division of Neurology at Children's Hospital Los Angeles.   Dr Santoro is a pediatric neurologist with special training in inflammatory and demyelinating disorders of the brain, spinal cord, and peripheral nervous system. Today we sit down and talk all things AGS, this is a great video to start learning about what Aicardi Goutieres syndrome is, the treatment available and tips on how to advocate better for your child.

Learn more about Dr Santoro here: https://www.chla.org/profile/jonathan-d-santoro-md

💚The Aicardi Goutieres Syndrome Advocacy Association works to improve the lives of individuals and families living with Aicardi-Goutieres Syndrome (AGS).  The Aicardi Goutieres Syndrome Advocacy Association (AGSAA) is a global coalition of deeply dedicated parent advocates working alongside clinicians, researchers, and scientists. We are united in our desire to improve the lives of individuals and families living with and yet to be diagnosed with Aicardi-Goutières Syndrome. Everything we do reflects a sense of urgency to rescue our community's potential and preserve quality of life. We’re focused on accelerating research, providing timely emotional and educational outreach, and developing ever-evolving clinical care recommendations to affected families. 

💚 501c nonprofit foundation 

💙 https://agsaa.org/about-ags 

💚 Socials: @agsadvocacy on all socials  

💙 Podcast: https://anchor.fm/agsadvocacy/    

🎧 Audible: https://music.amazon.com/podcasts/ce67f9a8-3b3a-453b-a689-52db2feaf375/the-rare-advocates   

🎧 Spotify: https://open.spotify.com/show/3S2K2zmVYauOgktU8G3Pdx   

🎧 Apple Podcast: https://podcasts.apple.com/us/podcast/the-rare-advocates/id1653511092   

🎧 Google Podcast: https://podcasts.google.com/feed/aHR0cHM6Ly9hbmNob3IuZm0vcy9jOWVmMDc1OC9wb2RjYXN0L3Jzcw?sa=X&ved=2ahUKEwihnZ-usKL7AhWupWoFHc9AC3QQ9sEGegQIARAC   

🎧YouTube: https://www.youtube.com/channel/UCOBML-3m7Q_iWZW3fvItFgA    

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