Women Leaders Rewriting the Protocols of Rare Disease Care
Description
This inspiring episode focuses on women leading innovation in medicine, as Dr. Hilary Longhurst and Mrinal Shah, PhD break down the revolutionary intersection of patient advocacy, clinical courage, and gene-editing technology for rare diseases like Hereditary Angioedema (HAE). Dr. Longhurst shares the moment she felt her voice and vision were challenged as a woman and the critical lesson that her greatest failures were "sins of omission," inspiring her to be brave and always represent the patient. Mrinal Shah, PhD discusses the importance of protecting curiosity and creativity in large systems, offering powerful advice to the next generation of women scientists: embrace change and have faith in yourself. The conversation highlights the essential role of women leaders in stepping outside conventional guidelines, forging courageous collaborations, and driving the responsible innovation that makes the impossible happen for patients globally.
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