Meniere's Muse

In this episode, Heather sits down with the Development Director at VeDA (Vestibular Disorders Association), who brings over 30 years of nonprofit fundraising experience to the conversation.  From regional theater to healthcare, to programs offering chess to low-income students, he has helped organizers raise millions of dollars to fulfill their missions.  For Paul, fundraising isn’t just about the money, it’s about the people, relationships and the shared mission that binds communities together.In this conversation, we discuss:~  Why fundraising is really about connection, not just donations~ How you can support in ways that feel authentic, through words, art, social media or simply starting conversations~ Why balance is a right, not a luxury~ How to invite your friends and family into supporting the vestibular communityThis episode is an invitation to participate.  Whether through a post, poem, donation or a partnership, there’s a way for YOU to join in!More on vestibular disorders www.vestibular.orgAre you a vestibular patient- PLEASE take a few moments and sign this registry The Dizziness, Vertigo and Imbalance Patient Registry - Vestibular Disorders AssociationConnect with Heather:  www.instagram.com/menieresmuseOr email her at menieresmuse@gmail.comThank you for being here!  Be sure to use the hashtags #balanceawarenessweek #vestibulardisordersassociation #menieresmuse #makevestibularvisible

What does support really look like when you have a chronic illness?  In this deeply personal episode, I share an essay I wrote during the early days of my dizzy journey, a time marked by misdiagnosis, fear and overwhelming change.This episode is more than a reflection.  It's a conversation about how support shows up, through partners, children, faith communities and sometimes even in the quiet spaces we least expect.  In this episode, I share what it's like to be held with compassion and how we can find or build meaningful support when it doesn't come easily.Whether you have a strong support system or you’re still searching for one, this episode is for you.  You are seen, you are believed, and you are not alone.VeDA Support Groups Online Support Groups - Vestibular Disorders AssociationLara’s private FB Support Group (2) Mummy Seeing Double Support Group | Facebook“8 Minute, One Connection”  S3E52 The podcast episode Heather shares about when you need support from a trusted friend https://open.spotify.com/episode/0XWstWOI5u1LU6F1el00cj?si=drl2SefMTDe6f9k58tdWuAIf you would like more information on vestibular disorders www.vestibular.orgIf you would like to reach out to me, Heather, please email me at Menieresmuse@gmail.com or find me on Instagram Thank you for being here! Don't forget to link, share and subscribe!#support #supportgroups #menieres #SCCD #vestibularmigraine #medicallyretired #familysupport #vestibular #onlinesupportgroups

In this episode of Vestibular Minutes, we’re talking about something that’s both sensitive and important—how to recognize red flags when someone promises a "cure" for Meniere’s disease. While it's natural to hope for relief, not all advice out there is trustworthy, and some people may use scientific language or emotional pressure to take advantage of vulnerable moments.Join me as we unpack how to protect ourselves and each other and why trusting your intuition is one of the most powerful tools you have. Real hope doesn’t come from false promises, it comes from community and clarity.Find me on InstagramEmail me at menieresmuse@gmail.comFor more information on vestibular disorders www.vestibular.orgVeDA also has a helpline for dizziness, imbalance and/or vertigo 1-800-837-8428

In this 1st episode of Vestibular Minutes of the Meniere's Muse Podcast, we explore the power of asking for support using the simple question: "Do you have 8 minutes?" Inspired by a thought-provoking reel by Simon Sinek, Heather discusses how just eight minutes of someone's time can bring comfort, build trust, and deepen emotional connections, especially for those navigating the challenges of vestibular disorders. Learn how to signal your need for help and create meaningful moments of connection in just a few minutes. To connect with me in Instagram Email me Watch reel with Simon Sinek on this theory For more information on vestibular disorders visit the VeDA website VeDA has a help line for dizziness, imbalance and/or vertigo 1-800-837-8428 Suicide and crisis line in the USA, 988 If you require further medical attention, please reach out to your local emergency services or call 911-if in the USA.

I learned a lot during my unexpected sabbatical, and now I'm excited to be back! In this episode, I’m sharing the key takeaways from my time away. From unexpected lessons to moments of personal growth, I’m diving into what I discovered about myself, my work, and life along the way. Whether you’re considering a sabbatical or just curious about the impact of a break, join me as I reflect on the valuable insights I’m bringing back with me. I would love to know what you want more of this year! Reach out to me: Instagram For more information on vestibular disorders I've missed you!

Today, we revisit Patrick as he shares how harnessing his power of belief has helped improve and, in some instances, eliminated some of the symptoms associated with Meniere's. He shares more deeply into his personal challenges and his story on Episode 12 of Season 1 of the Meniere's Muse Podcast, so be sure to listen! In this episode we discuss these and so much more: ~ where our symptoms come from, how the brain works, the "healing" glue ~ stress, chronic inflammation, anxiety, brain fog, the nervous system and symptom link ~ importance of addressing our beliefs, changing unhealthy beliefs, developing healthy routine All the ways to connect with Patrick are below: Website For a FREE Discovery Call Instagram Email If you would like to reach me, Heather: Email Instagram Leave a voice message If you would like more information on vestibular disorders please visit the VeDA website at www.vestibular.org Love and be gentle with yourself, lean on this beautiful community and remember that healing is possible.  I'll see you soon warriors! bensound.com/royalty-free-music License code: Q25BEF068CTQS5M6 #vertigo #dizziness #menieresdisease #menieres #healing #healingthrough belief #neuroplasticity #dizzy #vestibularcoach #vestibular

Have you ever heard the word comorbidity?  Ever wondered what it is?  The simple meaning is when someone has two or more medical conditions simultaneously.  We hear this a lot in the vestibular community.  These disorders/diseases can develop at the same or different times, they can interact with one another making diagnosis and treatment difficult.  These conditions can be both physical and/or mental and can increase the risk of complications or even the possibility of developing something new. AS YOU CAN IMAGINE, learning to live and navigate the world of medicine and life with comorbid conditions has its own set of challenges. In this episode, Heather shares about these challenges and so much more: ~ vertigo, migraine associated vertigo/vestibular migraine, ME/CFS, binocular vision disorder, brain fog, migraine threshold ~Advocacy, ableism, financial strain, hardship, insurance appeals Connect with todays guest, Heather: Instagram If you would like to reach out to the podcast host, Heather: Instagram EMAIL Leave a voice message If you would like more information on vestibular disorders please visit the VeDA website at www.vestibular.org Love and be gentle with yourself, lean on this beautiful community and remember that healing is possible.  I'll see you soon warriors! bensound.com/royalty-free-music License code: Q25BEF068CTQS5M6 #vertigo #dizziness #migraineassociatedvertigo #vestibularmigraine #myalgicencephalomyelitis #chronicfatiguesyndrome #brainfog #Advocacy #Spinning

"TINNITUS", that's what we are discussing today with Glenn Schweitzer. Glenn is a passionate entrepreneur, health coach, blogger, and the author of two best-selling books, “Mind Over Meniere’s: How I Conquered Meniere’s disease and Learned to Thrive” and “Rewiring Tinnitus: How I Finally Found Relief from the Ringing in My Ears". In this episode Glenn shares some of his strategies for tinnitus habituation and learning to live his best life with Meniere's. Here are some worksheets Glenn discusses in this episode, download your copy today!  ⁠Facing the Fear of Making Plans with Meniere’s Disease⁠ ⁠Meniere’s Disease Activity Planner Worksheet⁠ To connect with Glenn: Website: ⁠Rewiring Tinnitus⁠ Website: ⁠Mind Over Menieres⁠   Book Links: ⁠Rewiring Tinnitus: How I Finally Found Relief from the Ringing in My Ears⁠ ⁠Mind Over Meniere’s: How I Conquered Meniere’s Disease and Learned to Thrive⁠   Social Links: ⁠https://www.youtube.com/mindovermenieres⁠ ⁠https://www.youtube.com/rewiringtinnitus⁠ ⁠https://www.facebook.com/rewiringtinnitus⁠ ⁠https://www.facebook.com/mindovermenieres/⁠   Feel free to email Glenn: ⁠glenn@mindovermenieres.com⁠ and ⁠glenn@rewiringtinnitus.com⁠ Coaching Links: ⁠Tinnitus Coaching: Work with Glenn 1-on-1⁠ ⁠Meniere’ Disease Coaching: Work with Glenn 1-on-1⁠ If you would like to leave a VOICE MESSAGE for me, Heather please ⁠click here⁠. If you would like to grab the boor ⁠Dear Meniere's; Letters and Art: A global Meniere's Project⁠ (book, all proceeds go to Menere's research). Find me on⁠ Instagram⁠ For more information on vestibular disorders, please visit the ⁠VeDA website⁠ and MAKE VESTIBULAR VISIBLE! Music: bensound.com/royalty-free-music License code: Q25BEF068CTQS5M6 #menieres #tinnitus #vestibular #habituation #fear #vedaambassador #meditation #coaching #mindset #healing #movingpastfear

Scrolling Instagram, years ago I came across this stunning human, mermaiding. Watching her was hypnotic and our daughter became obsessed. After sometime I learned she had Meniere's. Today, Cally is here to share her story. She is a gentle soul and nature enthusiast, through her ups and downs, highs and lows she has a newfound appreciation for life. She is a new VeDA Ambassador and is looking forward to connecting with other warriors and sharing each others WINS! In this episode, Cally shares about these and other topics: ~ fluctuating hearing loss, vertigo, tinnitus, anxiety ~ sensory overload, visual sensitivity, drop attack, migraine ~ grief, embracing symptoms, living life anyway. Connect with Cally: Instagram Connect with Heather: Instagram YouTube To pick up your copy of Dear Meniere's Letters and Art: A Global Meniere's Project (Book, all proceeds go for Meniere's research) Email Heather Leave me a voicemail If you would like to learn more about vestibular disorders or to donate visit the Vestibular Disorders Association website. Register for LIFE REBALANCED LIVE for March2024. HELP MAKE VESTIBULAR VISIBLE! Share, tag, follow and review! Remember to love and be gentle with yourself, lean on this beautiful community and lastly believe healing is possible! See you soon warriors! Music: Bensound.com/royalty-free-music License code: Q25BEF068CTQS5M6 #menieres #menieresdisease #vestibular #vestibularmigraine #vedaambassador #meditation #cleaneating #mermaiding #anxiety #tinnitus #habituation #hearingloss #vertigo #sensoryoverload #visualsensitivity #healyourheadachebook #migrainevariant

Welcome to Season 3!  Todays guest, Sarah is here to share her story of going bilateral in her Meniere’s journey this past year. Sarah has been on the show 2 other times, in Season 1, Episode 2 she shares her vestibular journey and in Episode 27, we flip the tables and she interviews me where I share my emotional journey.  In this episode, Sarah opens about these and many other topics: ~ phantom sounds that replaced her low frequency hearing, tinnitus ~  EMDR Therapy, community connection, ~ noise sensitivity, progressive hearing loss, noise fluctuation ~ community connection, importance of support   Connect with Sarah: ⁠Instagram YouTube Dear Meniere's, Letters and Art, A Global Meniere's Project If you would like to reach me, Heather: ⁠Instagram⁠:  ⁠https://www.instagram.com/menieresmuse/⁠ ⁠YouTube Channel⁠:  ⁠https://www.youtube.com/channel/UCaR0emfgfCVb0vPqjQcbGwQ⁠ Podcast:  ⁠https://podcasters.spotify.com/pod/show/menieresmuse⁠ ⁠Email:⁠  ⁠menieresmuse@gmail.com⁠ Leave a VOICE MAIL, that may be used on a future episode at www.speakpipe.com/menieresmuse   If you would like to learn more about ⁠Vestibular Disorders Association⁠ please go to the vestibular disorder association website at ⁠www.vestibular.org⁠. REGISTER for VeDAs Life Rebalanced LIVE  at www.vestibular.org/lrl Help us MAKE VESTIBULAR VISIBLE! Remember to love yourself and be gentle with yourself, lean on this beautiful community, and lastly believe healing is possible. See you soon warriors!    Music: Bensound.com/royalty-free-music License code: Q25BEF068CTQS5M6 #Nystagmus #hardofhearing #hearingloss #EMDR #therapy #EMDRtherapy #phantomnoises #bilateralmenieres #menieres #menieresdisease #vestibulardisorder #balancedisorder #hyperacusis #migrainetriggers #progressivehearingloss #progressivehealing #earpressure #auralfullness #earpressure

Welcome to the Meniere's Muse Podcast! In this episode, your host, Heather shares her thoughts on living and thriving with vestibular disorders. This episode sets itself apart from earlier ones, as she candidly expresses thoughts that might not align with popular opinions in the vestibular community. If you would like to find more information on vestibular disorders, be sure to visit the VEDA website at vestibular.org If you would like to reach out Heather: ⁠Instagram⁠ ⁠YouTube⁠ ⁠Email⁠ Leave a voice message   ⁠www.speakpipe.com/menieresmuse⁠ Please remember to like, review, share and subscribe so you receive updates! I absolutely love hearing from you - so please leave a voice message or an email on your thoughts around this episode or if you know someone with an inspiring story. Remember to love and be gentle with yourself, lean on this beautiful community and lasting remember that healing is possible. See you soon Warriors!

I am healing. I am healthy. I am steady. I am stable. This is one affirmation todays guest, Christine uses to ground herself when she feels symptoms increasing. After seeing 13 doctors in 13 weeks Christine met with a certified vestibular therapist that she feels, finally diagnosed her correctly, this is where her journey to healing began.  She shares honestly and openly on TikTok and Instagram about her life navigating her dizzy world. Through humor and wit she will draw you in and remind you that living with these conditions is tough at times but, finding the humor in your situation and loving on others is makes the healing journey one to embrace.  Please welcome my friend and fellow VeDA Ambassador, That Dizzzy Girl, Christine.   In this episode we touch on these topics and so much more: ~ Relearning to live, grieving previous life, mental health is physical health ~ Vertigo, anxiety, chronic sinus infections, chronic dizziness, brain fog ~ Vestibular rehabilitation therapy, boundary setting, learning to pause ~ Career and chronic illness, navigating social media groups If you would like to find more information on vestibular disorders, be sure to visit the VEDA website at vestibular.org If you would like to reach out to Christine please find her: TikTok Email Instagram   If you would like to reach out to me, Heather: Instagram YouTube Email Leave a voice message   www.speakpipe.com/menieresmuse Well that’s all for today friends, thank you for being here, if you know someone with an inspiring story I would love to connect with them.  Remember to like, review and share. Remember to love and be gentle with yourself lean on this beautiful community and lasting remember that healing is possible

What would you think if you were told - you already have the right tools to begin your healing? With you right now!  Honestly, what would you think?   Would you want to know more?  I would! I have another question for you, do you believe that your healing begins with your mindset?  Of the nearly 4 dozen interviews I have had the pleasure of doing, the most common catalyst toward their healing was a HUGE mindset change.  In this episode, of the Menieres Muse Podcast, VeDA Ambassador, Etta opens up about how her journey began and her dedication to her own healing where she was able to reclaim her life. In this conversation we touch on these and so much more: ~ sensation of being pulled backward to the ground, vague feelings ~ brain training, DNRS, neuroplasticity, teaching your body ~ unique intervention, accepting the new you, separating symptoms from who you are ~ dizziness, complete lifestyle changes, loving life If you would like to connect with Etta, please find her on Instagram https://www.instagram.com/the_dizzy_diva/ If you would like to reach myself, Heather: Instagram:  https://www.instagram.com/menieresmuse/ YouTube Channel:  https://www.youtube.com/channel/UCaR0emfgfCVb0vPqjQcbGwQ Podcast:  https://podcasters.spotify.com/pod/show/menieresmuse Email:  menieresmuse@gmail.com Leave me a message at https://www.speakpipe.com/menieresmuse   If you would like to learn more about Vestibular Disorders Association please go to the VeDA website at www.vestibular.org Thank you for listening to the Meniere's Muse Podcast, if you haven’t left a review, please do so today, also like, subscribe, share and leave me a voice message – I love hearing what you love about the podcast and where you think improvement can be made.  I do this for YOU!  So your opinion matters. 

When you think of VeDA (Vestibular Disorders Association) what first comes to mind?  Practitioners, support groups, pink flamingos what comes to mind for you?  Well, after this conversation, VeDA, Vestibular Disorders Association will mean so much more.  The magnitude of things this organization has to offer is enormous and ever-changing due to its volunteers and all the people behind the scenes, like today's guest, Cynthia Ryan. Cynthia has worked in non-profit management for over 18 years, prior to her dedication to nonprofit work she honed her leadership skills by managing a financial research firm for 12 years.  Interestingly, Cynthia’s mother, Eileen, suffers from Meniere’s disease, vestibular migraine, and BPPV.  Stepping into her role as VeDAs Executive Director and hearing stories from vestibular warriors all over the world, Cynthia has begun to understand a little more intimately what her mother has and continues to live through. In this episode, we touch on these and many other topics:   ~ her mother’s Meniere’s journey, the impact of vestibular warriors stories, importance of sharing diagnosis and symptoms with family/friends, having a medical “team” is so important.   ~ the many things VeDA has to offer the community, ICU Podcast, VeDAs Board of Directors, Life Rebalanced Chronicles Docuseries - Season 2   ~ Upcoming Balance Awareness Week, Fiona Flamingo Contest, VeDA Support Network   ~  How you can help!! Write your congressman, find the "Legislative Advocacy Toolkit" link below, and complete the "New Patient Registry" New Patient ToolKit New patient Registry Want to get involved? Here is a great start Want to get more involved reach out to VeDA directly! Find a support group VeDA sponsored Podcasts Vestibular Disorders Association YouTube Channel!  Ways to give!  https://vestibular.org/article/get-involved/support-veda/ Find a Clinician If you would like to reach me, Heather: Instagram YouTube Channel Podcast  Email  Leave me a voice message!   Remember to love yourself, do the work, lean on this beautiful community, and lastly believe healing is possible.  See you next week warriors!

What brings you joy? What would your life look like if you focused on things you have control over? Joy is defined as a feeling of great pleasure and happiness. Joy looks different for everyone, for me it may be listening to my daughter singing from another room, connecting with others in the vestibular community, dancing to music that moves me, and even sitting quietly in nature with the sun on my face.  Whatever brings you joy, it's so important to find it and hold onto it. When I first came across today's guest, Geri's Instagram page, I felt her energy of pure joy as she shares her passion for the sacred flow art of hula hooping. In this episode, Geri opens up about these and many other topics:   ~ motion sickness as a child, menstrual headaches ~ movement meditation, grounding, finding purpose through your passion, remembering that God has your back ~ giving medication a chance, getting away from “constantly busy, constantly dizzy”, the art of listening to your body Connect with Geri McNiece: ⁠Instagram⁠ ⁠Linkedin⁠ ⁠Website⁠ ⁠Facebook⁠ If you would like to reach me, Heather: ⁠Instagram⁠ ⁠YouTube Channel⁠ ⁠Email⁠ ⁠⁠Leave me a voice message⁠⁠   If you would like to learn more about ⁠Vestibular Disorders Association⁠ please go to the vestibular disorder association website at ⁠www.vestibular.org⁠.   Please be sure to watch and share VeDAs along with UnFixed Medias, ⁠Life Rebalanced Chronicles Docuseries, Season 2, "Stepping Out of the Darkness"⁠ Remember to love yourself and be gentle with yourself, lean on this beautiful community, and lastly believe healing is possible. See you next week warriors!   

Have you ever had one of those conversations that softly changes your perspective?  When you sit back and just have to allow the moment to soak in, to let words take root?  This conversation is one of those.  Michelle Irving is a pioneer in the Chronic Illness Space, mentoring women around the world to step into a deeper positive relationship with themselves while living with chronic illness. In this episode, we touch on these and many more things: ~ Emotional empowerment, changing your inner story, badass boundaries, negotiating career choices ~ Flourishing with chronic illness, having a relationship with the illness, transitioning to wellness ~ Importance of understanding support, self-referenced power If you would like to reach out to Michelle, please find her: Link to the emotional map discussed Websites:   https://www.michelleiriving.com.au & http://careerandchronicillness.com Instagram Linkedin Facebook Twitter Her Podcast The Pajama Interviews can be heard on most major podcast platforms:  Spotify Apple PodCasts   If you would like to reach me, Heather:  Instagram YouTube Channel Podcast Private Facebook Group Email:  menieresmuse@gmail.com Leave me a voice message here   If you would like to learn more about Vestibular Disorders Association please go to the VeDA website at www.vestibular.org   We all have a story, let yours inspire others, if you would like to share your inspiring story with others or know someone that has a story that others would benefit from hearing – please reach out to me.  It’s all about connection after all. Thank you for listening!

So many of us can relate to Marissa’s story, symptoms coming on suddenly, heart racing, rocking motion, feeling as if she was drugged, and many unusual symptoms she had never felt before.  Over time she found her voice and learned the importance of self-advocacy.  Today, she uses her voice and story to connect with other vestibular warriors on several different platforms. In this episode, we touch on these and many more things: ~ mindset shift, symptom journaling, gratitude journaling, giving back ~ vestibular rehabilitation, behavioral vision doctor (Behavioral Optometrist), counselor/therapy ~ boundary setting, self-advocacy, support groups, family support If you would like to reach out to Marissa please click on the links below: ⁠YouTube⁠ ⁠Instagram ⁠  Living With Vestibular Migraine ⁠Instagram⁠   Finding your joy on your vestibular journey ⁠Facebook Vestibular Support Group:⁠  Meeting Every Thursday (see times below) ⁠Facebook -  Marissa's Page⁠ ⁠Twitter⁠ ⁠Spotify⁠ Vestibular Voices VeDA LBRC docuseries You can reach out to me below or leave me a voice message at https://www.speakpipe.com/MenieresMuse Instagram  YouTube Channel Private FaceBook    Email:  menieresmuse@gmail.com Support Groups  ⁠⁠⁠Online Support Groups⁠⁠⁠: Facilitated by Angela S., Lakin, Racheal, Dave, Joy and Marissa The meeting ID and Pass Code are the same for all meetings.  Meeting Id: 841 905 3323 Pass Code: dizzy Meniere's Support Group times: Wednesday 10am CT / 9am ET Wednesday 2pm CT / 1pm ET Wednesday 5pm CT / 4pm ET Wednesday 8:30pm CT / 7:30pm ET Vestibular Zoom Support Group Meetings (for all vestibular disorders): Thursdays at 8pm CT / 7pm ET Thank you for listening! Remember to love yourself, be open to the work, lean on this beautiful community, and lastly believe healing is possible.  See you next week warriors!  I’ll see you next week warriors.

When approached by Julieann Wallace with this crazy idea that came to her in the wee hours of the morning, I could never have imagined the magnitude of the emotional journey we were about to partake in. Letters, poems, and artwork flooded in. People diagnosed with Meniere’s gave us glimpses into the darkest part of their lives exposing delicate parts of their souls.  Today, instead of a podcast guest interview, I wanted to share a few letters that are included in this gorgeous book.  All proceeds will be donated to Meniere's Disease research. Hardback and paperback link Ebook To reach out to Sarah: Instagram Facebook Sober Gratitudes Podcast To read or listen to the book, "The Color of Broken" by Amelia Grace, all proceeds are donated to Meniere's Research To reach out to Patrick, please email him at: patvestibjourney@gmail.com To read Steve's book "On the Vertigo", One Sick Mans Journey To Make A Difference find it here, when you read his book, be certain to follow his journey on Instagram as you read through the book, you will be right there with him on the journey Instagram I WOULD LOVE TO HEAR WHAT YOU THOUGHT OF THE LETTERS TO MENIERE'S - LEAVE A VOICE MESSAGE HERE: Your message may be used on a future episode of the Meniere's Muse Podcast. If you would like to reach out to me, Heather Davies: Email me at menieresmuse@gmail.com ⁠⁠⁠⁠Instagram⁠⁠⁠⁠ ⁠⁠⁠⁠Private Facebook Group⁠⁠⁠⁠ ⁠⁠⁠⁠Leave a voice message⁠⁠⁠⁠ Would you like to JOIN THE MOVEMENT and make a donation in honor of my pledge for ⁠⁠Steps 2 Balance ⁠⁠week, May 21, 2023 through 27th, where we will be walking "together" to raise awareness, your support will also help make sure that when a person gets dizzy, they will get the help they need.  Please make your pledge ⁠⁠here⁠⁠ For more information on vestibular disorders please visit ⁠⁠⁠⁠VeDA website⁠⁠⁠⁠ ⁠⁠⁠Online Support Groups⁠⁠⁠: Facilitated by Angela S., Lakin, Racheal, Dave, Joy and Marissa The meeting ID and Pass Code are the same for all meetings.  Meeting Id: 841 905 3323 Pass Code: dizzy Meniere's Support Group times: Wednesday 10am CT / 9am ET Wednesday 2pm CT / 1pm ET Wednesday 5pm CT / 4pm ET Wednesday 8:30pm CT / 7:30pm ET Vestibular Zoom Support Group Meetings (for all vestibular disorders): Thursdays at 8pm CT / 7pm ET Thank you for listening! Remember to love yourself, be open to the work, lean on this beautiful community, and lastly believe healing is possible. 

This is Part Two of a 2-part series, where Daniela shares her story, if you haven't listened to Part One you may want to start there first. We deal with so many different emotions when experiencing vestibular symptoms; when we are misdiagnosed, or mistreated by the medical system, and even comparing our symptoms, treatments, and how we deal with each obstacle as it's introduced into our lives. Our reactions to the symptoms may vary may that be through guilt, self-pity, anger, feeling like a burden, sadness, or any of the other emotions we all deal with, and yes, we all deal with them very differently. Daniela shares how her behavior and emotions changed when symptoms arrived in her life, she is recovering as a better person. Her story is so relatable. I hope you find that too. . Today Daniela shares her story of working in academia as a college professor when her first bothersome symptom of visual disturbances began.  From there the symptoms only increased in intensity and over time she was finally diagnosed with PPPD (Persistent postural perceptual dizziness); neurovascular dizziness caused by jugular compression and thoracic outlet syndrome, along with third window syndrome from cochlear-facial nerve canal dehiscence.  So many things changed her life, but I will save all the details for her to share with you in this Part 1 of a two-part series. If you would like to reach out to Daniela, please find her on ⁠Instagram⁠ https://www.instagram.com/dizzyprof/ To read Daniela's book, "⁠Counterpreservation: Architectural Decay in Berlin since 1989"⁠, please find it on Amazon If you would like to reach out to me, Heather Davies: Email me at menieresmuse@gmail.com ⁠⁠⁠Instagram⁠⁠⁠ ⁠⁠⁠Private Facebook Group⁠⁠⁠ ⁠⁠⁠Leave a voice message⁠⁠⁠ Would you like to JOIN THE MOVEMENT and make a donation in honor of my pledge for ⁠Steps 2 Balance ⁠week, May 21, 2023 through 27th, where we will be walking "together" to raise awareness, your support will also help make sure that when a person gets dizzy, they will get the help they need.  Please make your pledge ⁠here⁠ https://vestibular.salsalabs.org/s2b-2023/p/HeatherDavies For more information on vestibular disorders please visit ⁠⁠⁠VeDA website⁠⁠⁠ at www.vestibular.org ⁠⁠Online Support Groups⁠⁠: Facilitated by Angela S., Lakin, Racheal, Dave, Joy and Marissa The meeting ID and Pass Code are the same for all meetings.  Meeting Id: 841 905 3323 Pass Code: dizzy Meniere's Support Group times: Wednesday 10am CT / 9am ET Wednesday 2pm CT / 1pm ET Wednesday 5pm CT / 4pm ET Wednesday 8:30pm CT / 7:30pm ET Vestibular Zoom Support Group Meetings (for all vestibular disorders): Thursdays at 8pm CT / 7pm ET Thank you for listening! Remember to love yourself, be open to the work, lean on this beautiful community, and lastly believe healing is possible.  See you next week warriors! 

Many have heard one of these variations in our lives, “burning the candle at both ends,” “biting off more than you can chew”,  “spreading yourself too thin” or my personal favorite “you can’t pour from an empty cup”.  Today's guest, was like many of the vestibular warriors I speak with,  stressed in our jobs, working insane hours, overextending ourselves, and at times, eating poorly and not getting enough sleep. Self-care was a reward that we gave ourselves for good behavior after we completed a task, like a clean house or some other goal.  I remember myself doing this in the past as well.  Today Daniela shares her story of working in academia as a college professor when her first bothersome symptom of visual disturbances began.  From there the symptoms only increased in intensity and over time she was finally diagnosed with PPPD (Persistent postural perceptual dizziness); neurovascular dizziness caused by jugular compression and thoracic outlet syndrome, along with third window syndrome from cochlear-facial nerve canal dehiscence.  So many things changed her life, but I will save all the details for her to share with you in this Part 1 of a two-part series. In this conversation, we discuss these and many other things: ~ being perfectly imperfect, unintentional gaslighting ~ guilt, shame, imposter syndrome, anxiety, comparison, anxiety, fear, stress ~ being grateful, support at work, single parenting ~ talk therapy, meditation, soft tissue therapy If you would like to reach out to Daniela, please find her on Instagram https://www.instagram.com/dizzyprof/ To read Daniela's book, "Counterpreservation: Architectural Decay in Berlin since 1989", please find it on Amazon If you would like to reach out to me, Heather Davies: Email me at menieresmuse@gmail.com ⁠⁠Instagram⁠⁠ ⁠⁠Private Facebook Group⁠⁠ ⁠⁠Leave a voice message⁠⁠ Would you like to JOIN THE MOVEMENT and make a donation in honor of my pledge for Steps 2 Balance week, May 21, 2023 through 27th, where we will be walking "together" to raise awareness, your support will also help make sure that when a person gets dizzy, they will get the help they need.  Please make your pledge here https://vestibular.salsalabs.org/s2b-2023/p/HeatherDavies For more information on vestibular disorders please visit ⁠⁠VeDA website⁠⁠ at www.vestibular.org ⁠Online Support Groups⁠: Facilitated by Angela S., Lakin, Racheal, Dave, Joy and Marissa The meeting ID and Pass Code are the same for all meetings.  Meeting Id: 841 905 3323 Pass Code: dizzy Meniere's Support Group times: Wednesday 10am CT / 9am ET Wednesday 2pm CT / 1pm ET Wednesday 5pm CT / 4pm ET Wednesday 8:30pm CT / 7:30pm ET Vestibular Zoom Support Group Meetings (for all vestibular disorders): Thursdays at 8pm CT / 7pm ET Thank you for listening! Remember to love yourself, be open to the work, lean on this beautiful community, and lastly believe healing is possible.  See you next week warriors!