When you think of VeDA (Vestibular Disorders Association) what first comes to mind?  Practitioners, support groups, pink flamingos what comes to mind for you?  Well, after this conversation, VeDA, Vestibular Disorders Association will mean so much more.  The magnitude of things this organization has to offer is enormous and ever-changing due to its volunteers and all the people behind the scenes, like today's guest, Cynthia Ryan.

Cynthia has worked in non-profit management for over 18 years, prior to her dedication to nonprofit work she honed her leadership skills by managing a financial research firm for 12 years.  Interestingly, Cynthia’s mother, Eileen, suffers from Meniere’s disease, vestibular migraine, and BPPV.  Stepping into her role as VeDAs Executive Director and hearing stories from vestibular warriors all over the world, Cynthia has begun to understand a little more intimately what her mother has and continues to live through.


In this episode, we touch on these and many other topics:
 
~ her mother’s Meniere’s journey, the impact of vestibular warriors stories, importance of sharing diagnosis and symptoms with family/friends, having a medical “team” is so important.
 
~ the many things VeDA has to offer the community, ICU Podcast, VeDAs Board of Directors, Life Rebalanced Chronicles Docuseries -
Season 2
 
~ Upcoming Balance Awareness Week, Fiona Flamingo Contest,
VeDA Support Network
 
~  How you can help!! Write your congressman, find the "Legislative Advocacy Toolkit" link below, and complete the "New Patient Registry"

New Patient ToolKit

New patient Registry

Want to get involved? Here is a great start

Want to get more involved reach out to VeDA directly!

Find a support group

VeDA sponsored Podcasts

Vestibular Disorders Association YouTube Channel! 

Ways to give!  https://vestibular.org/article/get-involved/support-veda/

Find a Clinician


If you would like to reach me, Heather:
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Remember to love yourself, do the work, lean on this
beautiful community, and lastly believe healing is possible.  See you next week warriors!