Daniela - Part 2 of 2 - PPPD, Neurovascular Dizziness, Jugular Compression, Thoracic Outlet Syndrome, Third Window Syndrome from Cochlear-Facial Nerve Canal Dehiscence, E 37
Description
This is Part Two of a 2-part series, where Daniela shares her story, if you haven't listened to Part One you may want to start there first. We deal with so many different emotions when experiencing vestibular symptoms; when we are misdiagnosed, or mistreated by the medical system, and even comparing our symptoms, treatments, and how we deal with each obstacle as it's introduced into our lives. Our reactions to the symptoms may vary may that be through guilt, self-pity, anger, feeling like a burden, sadness, or any of the other emotions we all deal with, and yes, we all deal with them very differently. Daniela shares how her behavior and emotions changed when symptoms arrived in her life, she is recovering as a better person. Her story is so relatable. I hope you find that too.
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Today Daniela shares her story of working in academia as a college professor when her first bothersome symptom of visual disturbances began. From there the symptoms only increased in intensity and over time she was finally diagnosed with PPPD (Persistent postural perceptual dizziness); neurovascular dizziness caused by jugular compression and thoracic outlet syndrome, along with third window syndrome from cochlear-facial nerve canal dehiscence. So many things changed her life, but I will save all the details for her to share with you in this Part 1 of a two-part series.
If you would like to reach out to Daniela, please find her on Instagram https://www.instagram.com/dizzyprof/
To read Daniela's book, "Counterpreservation: Architectural Decay in Berlin since 1989", please find it on Amazon
If you would like to reach out to me, Heather Davies:
Email me at menieresmuse@gmail.com
Would you like to JOIN THE MOVEMENT and make a donation in honor of my pledge for Steps 2 Balance week, May 21, 2023 through 27th, where we will be walking "together" to raise awareness, your support will also help make sure that when a person gets dizzy, they will get the help they need. Please make your pledge here https://vestibular.salsalabs.org/s2b-2023/p/HeatherDavies
For more information on vestibular disorders please visit VeDA website at www.vestibular.org
Online Support Groups: Facilitated by Angela S., Lakin, Racheal, Dave, Joy and Marissa
The meeting ID and Pass Code are the same for all meetings.
Meeting Id: 841 905 3323
Pass Code: dizzy
Meniere's Support Group times:
Wednesday 10am CT / 9am ET
Wednesday 2pm CT / 1pm ET
Wednesday 5pm CT / 4pm ET
Wednesday 8:30 pm CT / 7:30 pm ET
Vestibular Zoom Support Group Meetings (for all vestibular disorders):
Thursdays at 8pm CT / 7pm ET
Thank you for listening!
Remember to love yourself, be open to the work, lean on this beautiful community, and lastly believe healing is possible. See you next week warriors!
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