Epilepsy Sparks Insights

The epilepsies are a complex neurological disease, and patients, families, and clinicians all deserve clear, empowering information! Torie Robinson sits down with nurse, writer Cheryl Tveit and paediatric neurologist/epileptologist writer Dr. Charbel El Kosseifi. from Gillette Children’s Hospital to discuss their new Mac Keith Press book: “Epilepsy”. They explain how they simplified the science for everyone, highlighting crucial topics often ignored in clinic-like morbidities, driving, and the vital need for reassurance. An empowering publication!   We discuss: How the new Gillette Children's Hospital & Mac Keith Press book makes complex epilepsy science accessible for everyone The importance of plain language - not patronising, just clear The book's value for med students, residents, and practicing physicians Quality of life beyond seizures - school, work, relationships & mental health Cognition, anxiety, and other common comorbidities Writing with empathy and the voice of families Why collaboration between patients, clinicians, and educators matters   🔗 More about episode 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/epilepsy-book-full-life-guide   👤👤 More about Cheryl & Charbel 👇🏻 Cheryl https://www.torierobinson.com/guests/cheryl-tveit Charbel https://www.torierobinson.com/guests/charbel-el-kosseifi   📘 Get the book "Epilepsy" (Mac Keith Press) with 20% off 👇🏻 https://www.mackeith.co.uk/book/epilepsy - code: epilepsysparks20   👕 Join the Epilepsy Sparks community with our merch 👇🏻 https://epilepsy-sparks.creator-spring.com   🌐 More Epilepsy Sparks Insights 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights   🎧 Watch the video-podcast 👇🏻 https://youtu.be/bHhtMfNxErw    📒 Glossary 👇🏻 https://www.epilepsysparks.com/glossary  

This chat delves into the intricate relationship between the blood-brain barrier and epilepsy - particularly temporal lobe epilepsy! Claire, Chris, and Torie highlight the dysfunction of the blood-brain barrier in people with an epilepsy, the role of imaging techniques in assessing this dysfunction, and the outcomes of surgical interventions. Excitingly, Claire and Chris also explore future research directions aimed at targeting the blood-brain barrier to improve treatment outcomes! 🌐 More about the episode 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/claire-behan-chris-greene-blood-brain-barrier-temporal-lobe-epilepsy-neurosurgery    🌐 More about Claire https://www.torierobinson.com/guests/claire-behan    🌐 More about Chris https://www.torierobinson.com/guests/chris-greene    👕 Check out our cool merch 👇🏻 https://epilepsy-sparks.creator-spring.com    🌐 More Epilepsy Sparks Insights 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights      🎧 Listen to the podcast 👇🏻 https://epilepsysparksinsights.podbean.com      🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary   📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social - Instagram https://www.instagram.com/epilepsysparks - Facebook https://www.facebook.com/epilepsysparks  - TikTok https://www.tiktok.com/@epilepsysparks

Around 20–30% of people with an epilepsy don’t respond well to anti-seizure medications - so what happens next? Dr. Ricardo Morcos (UCLH) joins host Torie Robinson to explain the epilepsy surgery journey: how people are assessed, what tests are involved, and how teams make decisions together. We discuss: The “tube map”(!) that helps explain this complex process Why surgery isn’t talked about enough Common myths & fears What to expect from surgery & recovery How neuromodulation, new medications & trials also fit in This empowering conversation is for anyone affected by the epilepsies - patients, carers, and clinicians alike! Check out:  🔗 More about episode (inc. transcription) 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/ricardo-morcos-epilepsy-surgery-journey  🌐 More about Ricardo 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/ricardo-morcos  👕 Join the Epilepsy Sparks community with our merch 👇🏻 https://epilepsy-sparks.creator-spring.com  🌐 More Epilepsy Sparks Insights 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights  🎞️ Watch the Epilepsy Sparks Insights podcast on YouTube 👇🏻 https://youtu.be/QzIoLlRG1Lw    📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks  - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social  - Instagram https://www.instagram.com/epilepsysparks  - Facebook https://www.facebook.com/epilepsysparks   - TikTok https://www.tiktok.com/@epilepsysparks   

We discuss: Why epilepsy is up to four times more common in prison populations The role of traumatic brain injuries, substance use & mental health Barriers to accessing epilepsy specialists behind bars Misuse, mistiming, & under-optimisation of anti-seizure medications The continued use of rectal diazepam and lack of rescue treatment awareness Increased SUDEP risks for people with epilepsy in prisons How NICE guidelines should be improving care - but often aren’t What needs to change to ensure prisoners get the epilepsy care they are entitled to   🔗 More about episode 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/karen-mcleod-uk-prisons   More about Karen McLeod 👇🏻 https://www.torierobinson.com/guests/karen-mcleod   👕 Join the Epilepsy Sparks community with our merch 👇🏻 https://epilepsy-sparks.creator-spring.com   🌐 More Epilepsy Sparks Insights 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights   🎥 Watch the video 👇🏻 https://youtu.be/2yKOxliR1pY   🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary 👇🏻 https://www.epilepsysparks.com/glossary   📲 Connect with us Website https://www.epilepsysparks.com LinkedIn https://www.linkedin.com/company/epilepsy-sparks Bluesky https://bsky.app/profile/epilepsysparks.bsky.social Instagram https://www.instagram.com/epilepsysparks Facebook https://www.facebook.com/epilepsysparks TikTok https://www.tiktok.com/@epilepsysparks

The ILAE Academy is changing how clinicians and researchers learn about the epilepsies! Prof. Gagandeep Singh, Chair of the ILAE Education Council, joins Torie to explain how this innovative, self-paced, and structured platform is helping to shape the next generation of epilepsy specialists! We discuss: What the ILAE Academy is and who it’s for How it keeps up with new discoveries Why accessibility and affordability matter The future of interactive, AI-based learning 🔗 More about episode (inc. transcription) 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/gagandeep-singh-ilae-academy    🤩 More about Gagandeep 👇🏻 https://www.torierobinson.com/guests/gagandeep-singh    🎓 The ILAE Academy https://ilae-academy.totaratalent.com    👕 Join the Epilepsy Sparks community with our merch 👇🏻 https://epilepsy-sparks.creator-spring.com   🌐 More Epilepsy Sparks Insights 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights    🎞️ Watch episode on YouTube 👇🏻 https://youtu.be/PrYZyKrb4Ec    🔤  Learn key terms related to the epilepsies and neuroscience here 👇🏻 https://www.epilepsysparks.com/glossary    📲 Connect with us! 👇🏻 Website https://www.epilepsysparks.com  LinkedIn https://www.linkedin.com/company/epilepsy-sparks  Bluesky https://bsky.app/profile/epilepsysparks.bsky.social  Instagram https://www.instagram.com/epilepsysparks  Facebook https://www.facebook.com/epilepsysparks  TikTok https://www.tiktok.com/@epilepsysparks 

How much do carers really contribute to epilepsy care, & why are their struggles so often invisible? 💜 Dr. Florien Boele, a researcher in psychosocial oncology & caregiving, talks about the essential but often overlooked role of unpaid carers for adults with epilepsy. Florien talks with Torie about: Who carers are The staggering £184 billion value that carers add to the UK economy The personal costs of caregiving - sleep, stress, health, finances & relationships Why epilepsy research rarely includes carers (compared with other diseases) The importance of measuring carer outcomes through core outcome sets Florien’s study to define what truly matters most to carers 👉🏻 Tune in to hear how research is beginning to highlight carers’ voices & why supporting them means supporting people with epilepsy too.   🔗 More about episode 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/florien-boele-quality-of-life-carers-epilepsy   🤩 More about Florien 👇🏻 Dr. Florien Boele | Family caregiving, quality of life, & the epilepsies — Torie Robinson   👕 Join the Epilepsy Sparks community with our merch!👇🏻 https://epilepsy-sparks.creator-spring.com   🌐 More Epilepsy Sparks Insights 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights   🎧 Watch episode on YouTube 👇🏻 https://youtu.be/7F7N3TvnMjM    🔤 Learn key terms related to the epilepsies and neuroscience here 👇🏻 https://www.epilepsysparks.com/glossary    📲 Connect with us! 👇🏻 Website https://www.epilepsysparks.com LinkedIn https://www.linkedin.com/company/epilepsy-sparks Bluesky https://bsky.app/profile/epilepsysparks.bsky.social Instagram https://www.instagram.com/epilepsysparks Facebook https://www.facebook.com/epilepsysparks TikTok https://www.tiktok.com/@epilepsysparks

Did you know seizure diaries in LGS & Dravet often capture less than half of seizures?! Today we hear from Dr. Ewan Nurse, an engineer & epilepsy researcher in Melbourne, who shares research into seizure reporting in developmental & epileptic encephalopathies (DEEs). We explore why seizure diaries miss so many seizures, how carers sometimes log non-seizure events, and what that means for families and clinicians. Ewan also talks about the promise & limits of wearable devices, EEG headbands & implants, and why collaboration between engineers, clinicians, carers & families is essential for the future of epilepsy care. 🌐 More about Ewan👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/ewan-nurse-seizure-diaries-eeg-dees-dravet-lgs    🌐 More Epilepsy Sparks Insights 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights     👕 Check out our cool merch 👇🏻 https://epilepsy-sparks.creator-spring.com    🎧 Listen to the podcast 👇🏻 https://epilepsysparksinsights.podbean.com     📖 Chapters 00:00 Intro 14:30 Understanding Developmental and Epileptic Encephalopathies 17:57 Future of Seizure Tracking Technology 21:01 Collaboration Between Clinicians and Engineers 23:52 The Broader Impact of Epilepsy Beyond Seizures 00:00 Conclusion & Thanks   🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary    📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks  - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social  - Instagram https://www.instagram.com/epilepsysparks  - Facebook https://www.facebook.com/epilepsysparks   - TikTok https://www.tiktok.com/@epilepsysparks 

In this first half of our chat with Dr. Ewan Nurse, we explore why seizure reporting matters so much in epilepsy care. From forgotten focal seizures to the challenges of eyewitness accounts, Ewan explains why accurate seizure diaries are vital yet so difficult to achieve. We discuss research findings showing that most minor seizures go unreported(!), why some go over-reported(!), the role of memory, stigma, and psychology in diary-keeping, and the importance of involving carers in the process.   🌐 More about Ewan👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/ewan-nurse-seizure-diaries-silent-witness   🌐 More Epilepsy Sparks Insights 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights     👕 Check out our cool merch 👇🏻 https://epilepsy-sparks.creator-spring.com    🎧 Watch on YouTube to the podcast 👇🏻 https://youtu.be/rP7sTgSSiik    📖 Chapters 00:00 Intro – How reliable are seizure diaries really? 01:09 Meet Dr. Ewan Nurse - Engineer & epilepsy researcher from Melbourne 02:05 Why seizure reporting is fundamental for diagnosis & treatment 03:46 Landmark study: only 1 in 3 seizures recorded during video EEG 04:55 Overreporting - when non-seizure events make it into diaries 07:37 Why subtle seizures are the hardest to track 09:28 Psychology, identity & why some people don’t record their seizures 10:12 The role of witnesses in reporting & why so many seizures are missed 11:26 Cool paper on the topic “The Silent Witness, the unseen gaps in eyewitness recognition of seizures" 13:50 Education, collaboration & improving seizure reporting for better care 14:10 Closing thoughts + what’s coming in Part 2   🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary    📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks  - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social  - Instagram https://www.instagram.com/epilepsysparks  - Facebook https://www.facebook.com/epilepsysparks   - TikTok https://www.tiktok.com/@epilepsysparks 

In this second episode with Dr Phillip Pearl, we explore the human side of rare epilepsies: what drives him as a paediatric neurologist, how advocacy transforms progress, and why research in ultra-rare conditions can change the lives of people with common disorders. We also tackle difficult but vital topics - SUDEP, depression, and suicide in epilepsy - and end on a hopeful note with music and the brain!   🌐 More about Phillip 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/phillip-pearl-rare-epilepsies-sudep-neurology-journey     👕 Check out our cool merch 👇🏻 https://epilepsy-sparks.creator-spring.com    🌐 More Epilepsy Sparks Insights 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights    🎧 Watch the chat on YouTube 👇🏻 https://youtu.be/scBYPashBAs    📖 Chapters 00:00 – Intro 00:56 – Meet Dr Phillip Pearl 01:17 – What keeps you going, as a paediatric neurologist 03:19 – Choosing paediatric neurology 05:06 – Falling in love with neurology 06:25 – Future of metabolic epilepsies 07:30 – Gene therapy breakthroughs 09:44 – SUDEP & risk awareness 11:18 – Depression, mortality, & suicide in epilepsy 11:55 – The intersection of music and epilepsy 12:28 – Conclusion & thanks   🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary    📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks  - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social  - Instagram https://www.instagram.com/epilepsysparks  - Facebook https://www.facebook.com/epilepsysparks   - TikTok https://www.tiktok.com/@epilepsysparks 

Neurologist Dr Phillip Pearl (Boston Children’s Hospital / Harvard Medical School), joins Torie to explore inherited metabolic epilepsies. He explains why include far more than seizures, shares powerful stories (including vitamin B6-responsive epilepsy), and traces the progress from mid-20th century discoveries to today’s targeted therapies -  including research into gene therapy!   👕 Check out our cool merch 👇🏻 https://epilepsy-sparks.creator-spring.com   🌐 More about Phillip 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/phillip-pearl-inherited-metabolic-epilepsies-gene-therapy    🌐 More Epilepsy Sparks Insights 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights   🎧 Watch the video 👇🏻 https://youtu.be/yJ31k_6xNNg    📖 Chapters 00:00 Intro 00:00 Meet Philip 02:52 Understanding Inherited Metabolic Epilepsies 06:08 The Role of Genetics in Epilepsy 08:58 Transformational Treatments in Epilepsy 12:05 The Future of Epilepsy Treatment 00:00 Conclusion & Thanks   🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary    📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks  - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social  - Instagram https://www.instagram.com/epilepsysparks  - Facebook https://www.facebook.com/epilepsysparks   - TikTok https://www.tiktok.com/@epilepsysparks 

Asst. Prof. Simona Balestrini, an adult and paediatric neurologist, shares her epilepsy research into the use of transcranial magnetic stimulation (TMS) as a tool for understanding genetic forms of epilepsy! She explains the methodology of TMS, its applications in clinical and research settings, and the importance of safety in its use for people with an epilepsy. The chat also explores future directions for TMS, including its potential as a treatment option! 📖 Chapters 00:00 Intro 00:22 Meet Simona Balestrini 02:20 What Transcranial Magnetic Stimulation Actually Is 03:47 How Simona Uses TMS in Epilepsy Research 05:56 What TMS Reveals About Genetic Epilepsies 09:50 Why Safety Matters in Magnetic Brain Stimulation 12:09 Could TMS Guide or Improve Treatment? 14:31 Looking Ahead: The Future of TMS in Epilepsy 14:57 Closing Thanks & Where to Learn More   🎞️ Watch on YouTube 👇🏻 https://youtu.be/hyLxVtc6ud8    🌐 More Epilepsy Sparks Insights 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights     🌐 More about Simona 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/simona-balestrini-transcranial-magnetic-stimulation    👕 Check out our cool merch 👇🏻 https://epilepsy-sparks.creator-spring.com    🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary    📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks  - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social  - Instagram https://www.instagram.com/epilepsysparks  - Facebook https://www.facebook.com/epilepsysparks - TikTok https://www.tiktok.com/@epilepsysparks 

An epilepsy specialist neurologist develops an epilepsy! In this fascinating episode, we delve into the extraordinary journey of Dr. Jim Morrow, a retired consultant neurologist who ends up developing the disease himself! Jim shares his unique perspective on the challenges and ironies of navigating life with an epilepsy; from his initial diagnosis of Autoimmune Limbic Encephalitis due to a Voltage-Gated Potassium Channel Antibody, to the impact on his professional and personal life. Tune in also to learn about Jim’s fun, fictional books (with a medical twist) - out now! 🎧 Listen to the podcast 👇🏻 https://epilepsysparksinsights.podbean.com     🌐 More Epilepsy Sparks Insights 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights     🌐 More about Jim 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/jim-morrow-neurologist-diagnosed-epilepsy-autoimmune-encephalitis    👕 Check out our cool merch 👇🏻 https://epilepsy-sparks.creator-spring.com    📖 Chapters  00:00 Intro 00:00 Meet XXX   00:00 Conclusion & Thanks   🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary     📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks  - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social  - Instagram https://www.instagram.com/epilepsysparks  - Facebook https://www.facebook.com/epilepsysparks  - TikTok https://www.tiktok.com/@epilepsysparks 

Paediatric Neurologist Dr Yanin Rivera shares how cultural beliefs, limited access to healthcare, education, and innovative telemedicine solutions are shaping the landscape of epilepsy treatment, care, and prevention in Mexico!   🎧 Listen on all platforms 👇🏻 https://www.youtube.com/@EpilepsySparksInsights   🌐 More Epilepsy Sparks Insights 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights     🌐 More about Yanin 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/yanin-rivera-mexico-lmic-culture-telemedicine    👕 Check out our cool merch 👇🏻 https://epilepsy-sparks.creator-spring.com    📖 Chapters  00:00 Intro 00:00 Meet Brad & Lucas   00:00 Conclusion & Thanks   🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary    📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks  - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social  - Instagram https://www.instagram.com/epilepsysparks  - Facebook https://www.facebook.com/epilepsysparks - TikTok https://www.tiktok.com/@epilepsysparks 

Sexual health in epilepsy is vital - but many clinicians and patients hesitate to address it. 💜 Epileptologists Dr. Brad Kamitaki and Dr. Lucas Orellana join Torie Robinson for a warm, giggly, and open conversation on: Why clinician confidence matters in sexual health discussions Cultural barriers that can silence important conversations Creating safe spaces for patients What’s coming up at the IBE Lisbon 2025 conference! 🎧 Listen now to break barriers with us - and maybe share a laugh along the way.   🎧 Listen on all platforms 👇🏻 https://www.youtube.com/@EpilepsySparksInsights   🌐 More Epilepsy Sparks Insights 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights    🌐 More about Brad & Lucas 👇🏻 www.torierobinson.com/epilepsy-sparks-insights/brad-katmitaki-lucas-orellana-sexual-health-epilepsy-clinician-patient-confidence   🌐 More about the conference 👇🏻 https://www.ilae.org/congresses/36th-international-epilepsy-congress/section/sectionid/1   👕 Check out our cool merch 👇🏻 https://epilepsy-sparks.creator-spring.com   📖 Chapters  - Intro - Meet Brad & Lucas - Challenges in Discussing Sexual Health - Patient Perspectives on Sexual Health - Cultural Influences on Conversations about Sex - Experiences in Discussing Sexual Health with Patients - Evolving Medical Education and Open-Mindedness - Interactive Learning and Role Play at the Conference - Conclusion & Thanks   🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary    📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social - Instagram https://www.instagram.com/epilepsysparks - Facebook https://www.facebook.com/epilepsysparks  - TikTok https://www.tiktok.com/@epilepsysparks  

Milena Gandy (Clinical Psychologist) and Heidi Munger Clary (Epileptologist) chat with Torie about the intersection of epilepsy and suicide, emphasising the importance of welcoming talking about addressing mental health issues in patients with an epilepsy. They go into the stigma surrounding suicidal thoughts, the need for open conversations between patients and clinicians, and strategies for improving patient care and quality of life. The chat also highlights the upcoming, fun(!) IEC workshop in Lisbon, aimed at enhancing patient-centered communication in epilepsy care. ------------------------------------------ Suicide crisis lines 👇🏻 https://en.wikipedia.org/wiki/List_of_suicide_crisis_lines ------------------------------------------ 🔗 Website & more about Milena Gandy & Heidi Munger Clary 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/milena-gandy-heidi-munger-clary-su!c&&&de-lisbon-iec-2025  ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary 👇🏻 https://www.epilepsysparks.com/glossary  ------------------------------------------ 📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social - Instagram https://www.instagram.com/epilepsysparks - Facebook https://www.facebook.com/epilepsysparks  - TikTok https://www.tiktok.com/@epilepsysparks  

Neurologist Dr Parthvi Ravat shares the relationship between epilepsy and Non-Epileptic Events* (also known as dissociative Seizures and PNES), symptoms of the latter, treatment options, and the importance of research and awareness in improving patient outcomes. Parthvi highlights the complexities of diagnosing and managing FND and Dissociative Seizures/PNES/Non-Epileptic Events, the need for a multidisciplinary approach, and the shared experiences of patients experiencing both an epilepsy and NEEs! *A type of Functional Neurological Disorder (FND) ------------------------------------------ 🔗 Website & more about Parthvi: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/parthvi-ravat-fnd-functional-neurological-disorder  ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary  ------------------------------------------ 📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social - Instagram https://www.instagram.com/epilepsysparks - Facebook https://www.facebook.com/epilepsysparks  - TikTok https://www.tiktok.com/@epilepsysparks

Adult neurologist and epileptologist Lucas Orellana shares the intriguing connection between migraine and epilepsy! These seemingly distinct neurological conditions share common pathogenic mechanisms, genetics, and treatments and while they are often experienced together there may be challenges in distinguishing between them. Lucas emphasises the importance of personalised treatment plans and the role of lifestyle factors and stress as common triggers. ------------------------------------------ 🔗 Website & more about Lucas: 👇🏻 http://torierobinson.com/epilepsy-sparks-insights/lucas-orellana-migraine ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary  ------------------------------------------ 📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks  - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social  - Instagram https://www.instagram.com/epilepsysparks  - Facebook https://www.facebook.com/epilepsysparks  - TikTok https://www.tiktok.com/@epilepsysparks   

Epileptologist Daniel Goldenholz shares his innovative approach to using 3D printing technology to create practical tools for epilepsy care! He tells us about the evolution of his products - designed to assist caregivers/public during seizures. He also explains how accessible, customisable, and durable they are, and chats about the importance of community engagement and collaboration to spread awareness and provide support for those affected by an epilepsy! ------------------------------------------ 🔗 Safesteps platform 👇🏻 https://sites.google.com/site/danielgoldenholz/Home/safesteps-platform  ------------------------------------------ 🔗 Website & more about Daniel 👇🏻   https://www.torierobinson.com/epilepsy-sparks-insights/daniel-goldenholz-safesteps ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary  ------------------------------------------ 📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social - Instagram https://www.instagram.com/epilepsysparks - Facebook https://www.facebook.com/epilepsysparks  - TikTok https://www.tiktok.com/@epilepsysparks  

Epilepsy Specialist Nurse Jenny Edwards, shares how she supports people who experience sexual dysfunction and epilepsy, focusing on the importance of open communication and building trust with patients. She emphasises the need for a holistic approach to care, including mental health support, and the significance of understanding the different types of epilepsy and their impacts on patients' lives. The chat highlights the challenges patients face in discussing sensitive topics and the vital role nurses play in facilitating these conversations. ------------------------------------------ 🔗 Website & more about Jenny: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/jenny-edwards-flaccid-dry-disinterested  ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary  ------------------------------------------ 📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks  - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social   - Instagram https://www.instagram.com/epilepsysparks  - Facebook https://www.facebook.com/epilepsysparks    - TikTok https://www.tiktok.com/@epilepsysparks  

Sex! It's a key part of the lives of homo sapiens - including those with an epilepsy! Epilepsy Specialist Nurse Jenny Edwards shares how sexual dysfunction is more common in people with an epilepsy and how she provides support to her patients affected - whether issues be libido, dating, arousal, orgasm, penetration, masturbation, emotional relationships - anything, really! This is part 1 of 2 with Jenny. ------------------------------------------ 🔗 Website & more about Jenny: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/ ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary  ------------------------------------------ 📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks  - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social  - Instagram https://www.instagram.com/epilepsysparks  - Facebook https://www.facebook.com/epilepsysparks   - TikTok https://www.tiktok.com/@epilepsysparks