In this episode, we have two return guests: George Pollock, Team FSHD Cycling, and Ally Roets, Parents’ Roundtable Leadership. George and Ally join Tim to discuss their participation in the upcoming Tour de Tuscon, a world-class cycling race, and their work to raise awareness about and funds for Early Onset FSHD research & treatment access. While Ally covers the importance of Early Onset specific research and funding, Geroge discusses the mindset and intentional training behind his training. Living with FSHD is like competing in an endurance event: it takes mindset, training, nutrition and hydration, consistency, support, and rest.



As George says: Movement is medicine, you have to do hard things.



Learn more about Early Onset FSHD: https://www.fshdsociety.org/early-onset-fshd/



Help George, Ally, and the rest of our riders reach their goal of raising $30,000 to support Early Onset FSHD research, support & treatments.

Ally’s Page: https://www.eltourtucson.org/earlyonsetfshd

George’s Page: https://www.eltourtucson.org/fshdcyclist

Tom’s Page: https://www.eltourtucson.org/Race/80091/Donate/fSbhnc05DGgxWHeq



This episode contains a video created by Sam Ray. You can view the original video on Youtube: https://youtu.be/PydgQ7C7F08?si=juUA7u1L9VBMmB74 



No one knows the experience of living with FSHD better than those who have it. FSHD Straight Talk features stories of life with this rare disease. Tune in to learn from, laugh, celebrate and sometimes grieve with fellow members of the FSHD community. Whatever your journey, we hope you’ll find yourself in these episodes and know you are not alone.



On the second and fourth Tuesday of every month, listen for a new episode of FSHD Straight Talk with Tim Hollenback! These episodes highlight members of the FSHD Community who are living rich, full lives and diving into their experiences with FSHD. 



If you would like to share your experiences living with FSHD, please reach out via email or send us a message on social media.



Email: FSHDRadio@FSHDSociety.Org



You can find new episodes on YouTube and Facebook. You can also listen to the episode on your favorite podcast app. Subscribe on YouTube or your podcast app to make sure you never miss an episode!