Case #01: Nyobie
Update: 2022-10-05
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Nyobie grew up knowing there was something different about her body. As a young woman, she was plagued by unexplained symptoms doctors initially dismissed as part of puberty. But persistent pain and swelling in her arms and legs were just the beginning of her battle. After 19 years of being silenced and misled, Nyobie finally found a life-changing doctor - and diagnosis.
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****** SPOILER ALERT BELOW ******
If you’re looking for more information on Lupus, you can check out the Lupus Foundation of America by heading to Lupus.org. You can also learn more about Nyobie Gordon-Rick and the work of National Health Educator Leticia Ocaña.
See omnystudio.com/listener for privacy information.
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I have been missing diagnosed. I have rare disease sarcoidosis and inflammatory diseases. I have been told that since I received my diagnosis , sarcoidosis doesn't hurt, and my symptoms are all I n my head.. I have since gineb up on the American health system.
FYI... poverty is NOT a race. The doctors that missed the diagnosis were white, obviously but the Dr that spoke on this podcast said Lupus is hard to diagnose and there isn't a specific test. That also has nothing to do with race but you made it out to be. Why can't these stories be inspiring to EVERYONE?
I wish I knew what meds she was on b/c after 12 years (starting at 20 years old) I've been diagnosed with an autoimmune disease but not sure which one & lupus is a big one still on the table