EP 45: Living with dysphagia & ineffective esophageal motility with Adrienne
Description
What is it like to live with dysphagia due to ineffective esophageal motility (IEM)? In this episode, Adrienne shares her personal journey: from first noticing symptoms, through the path to diagnosis, and how the condition has evolved over time.
We explore the deep impact of IEM on eating, drinking, social life, and quality of life. Adrienne talks about what it is like to have an invisible disease, the struggles of explaining the condition to family and friends, the treatments and strategies she has tried, what has helped, and what remains challenging.
To close, she offers thoughtful advice for others newly diagnosed with IEM, as well as important insights for healthcare professionals supporting people with this condition.
Literature that we talk about:
- Kamboj et al. (2024). A practical approach to ineffective esophageal motility. https://doi.org/10.1111/nmo.14839
- Schroeder et al. (2024). Ineffective Esophageal Motility: Current Criteria and Management. https://doi.org/10.1007/s11938-024-00466-0
- Tuchman, J. (2022). Dysphagia Naturally: Tips, Tools, and Resources for Patients with Swallowing Disorders.
United States
