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Once Upon A Gene
Eight Years of Searching: A Determined Family’s Quest to Cure an Ultra-Rare CLCN6 Mutation with Kristin & Paul Purdy

Eight Years of Searching: A Determined Family’s Quest to Cure an Ultra-Rare CLCN6 Mutation with Kristin & Paul Purdy
Update: 2025-01-02
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Links & Resources:
Follow Their Journey on Social Media
- Facebook: Paxtons Pioneers
- Instagram: Paxtons_Pioneers
KCAL News Story
- Watch the in-depth feature on their family’s advocacy here: KCAL Rare Disease Coverage
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