Ep 105. Why Talking About Interstitial Cystitis Matters More Than You Think
Description
If you’ve ever held your bladder during a meeting, a flight, or a road trip because you didn’t want to inconvenience anyone, this episode is for you.
In this episode, I’m walking you through what it means to advocate for yourself and the IC community, and why staying quiet might be protecting other people’s comfort at the expense of your own truth.
In this episode, I’m breaking down:
- Why we’ve been trained to shrink our stories and play small
- The mindset shift that helped me stop apologizing for my symptoms
- Small ways to talk about IC in everyday life (even if it feels awkward)
- A story about the coworker who surprised me with "I have IC too"
- Tangible steps to advocate for funding and research
- How sharing your story online actually moves the needle
If you've ever told yourself, “I don’t want to make people uncomfortable,” or “What’s the point, no one gets it,” I want you to really tune in. This isn’t just about becoming an advocate. It’s about refusing to gaslight yourself just to keep the peace.
Whether you're explaining IC to a friend or emailing your senator, your voice matters. Your story matters. And every step you take to get a little more visible makes a difference.
TAKE ACTION:
- Share your story on social media and tag me @callieknutrition
- Want help explaining IC in plain language? Go back and listen to Episode 102. It gives you actual scripts and examples for talking to loved ones.
- Advocate to your legislators: Check out the ICA's Advocacy Toolkit to make it easier to reach out to your state reps and join the movement for more research and funding.




