Future of Owning, Storing & Sharing Your Health Data – EP04: Ardy Arianpour (Seqster)
Update: 2018-09-28
Description
In this fourth episode, Ardy Arianpour, CEO and Co-Founder of Seqster, shares why the future of your health data is a centralized view, controlled by you, pulled from wearables, genetic tests, logged nutritional intake as well as your medical records even if spread across medical institutions. He relates the unique ability and need to share our lifetime of health data transgenerationally.
Topics we discussed in this episode
- Apple’s acquisition of Gliimpse in 2016
- Google’s failed attempt of personal health data storage
- Microsoft HealthVault
- Apple Medical Records
- Why Seqster is different from other services offering to collate your medical records
- The consumer value of longitudinally matched data sets, particularly multi-generational
- The hijacking of Electronic Medical Records for greater profit rather than patient care
- The ability to provide a single unified view of our health data, spanning wearable devices, to lab tests such as genetics, to our electronic medical records even if spread over multiple institutions
- The reluctance of orthodox healthcare to liberate our health data
- The creation of a new legal framework to share our lifetime of health data with our family and/or society, posthumous
Show links
- Seqster Website
- Chain of Custody Wikipedia Entry
- PatientBank Shutdown Notification Blog Post
- National Institutes of Health (NIH) — All of Us Research Program Web Page
- Gliimpse CrunchBase Entry
- Picnic Health Website
- Heads Up Health Website
- Fast Healthcare Interoperability Resources (FHIR) Wikipedia Entry
- Affective Computing Wikipedia Entry
- Google Health Wikipedia Entry
- Stanford Medicine September 2018 White Paper: The Future of Electronic Health Records PDF
- An American Sickness: How Healthcare Became Big Business and How You Can Take It Back by Elisabeth Rosenthal Book
- Hyper Wellbeing 2016 Conference Video – Walter De Brouwer: From IA to AI in Healthcare
- Microsoft HealthVault Web Page
- HumanAPI Website
- Apple Health Records Web Page
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