Rare Disease Research

Update: 2020-08-07

Description

Tune into this episode to learn more about research of rare diseases! Join Liesha Yenduri, Shaping Foundation's co-founder and co-president, as she discusses how research on rare diseases works, organizations supporting research, and the challenges faced by the rare community in terms of research.

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In Channel

A Discussion with Katie Callaghan

2021-04-1118:10

Update + Rare Disease Day

2021-03-0509:06

Victoria Jackson’s Story with Endosalpingiosis and Endometriosis: A Lesson in Self-Advocacy

2020-12-2306:59

Sofie’s Journey with Spina Bifida

2020-11-2905:58

Ali’s Journey with Pediatric Wild-Type GIST

2020-10-2308:19

Sickle Cell Awareness

2020-10-0204:40

Ishana Sukhbir’s Experience with SCA2 and International Ataxia Awareness Day!

2020-09-2507:09

Tabitha L. Frank’s Journey with Endosalpingiosis

2020-09-1909:39

Interview with Rare Disease Advocate: Dr. Shyamala Peesapati

2020-08-3020:53

Mackenzie Lea's Battle with Trigeminal Neuralgia

2020-08-2220:41

Gary M. Johnson's Journey with SCA2

2020-08-1412:37

Rare Disease Research

2020-08-0711:34

Introduction to Rare Diseases

2020-07-3107:37

Welcome to Once Upon a Blue Moon

2020-07-2101:44

00:00

Rare Disease Research

Our Leaders: Pooja, Liesha, Anirudh, and Cayla!

#box-pro-ellipsis-176451445887895{-webkit-line-clamp:2;}Rare Disease Research

Rare Disease Research

Our Leaders: Pooja, Liesha, Anirudh, and Cayla!

Rare Disease Research