Update + Rare Disease Day

Update: 2021-03-05

Description

Happy new year! A big thank you to all of our listeners who have stuck with us so far. In this episode, we speak about the events of the past two months and what we hope to do in the next year.

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In Channel

A Discussion with Katie Callaghan

2021-04-1118:10

Update + Rare Disease Day

2021-03-0509:06

Victoria Jackson’s Story with Endosalpingiosis and Endometriosis: A Lesson in Self-Advocacy

2020-12-2306:59

Sofie’s Journey with Spina Bifida

2020-11-2905:58

Ali’s Journey with Pediatric Wild-Type GIST

2020-10-2308:19

Sickle Cell Awareness

2020-10-0204:40

Ishana Sukhbir’s Experience with SCA2 and International Ataxia Awareness Day!

2020-09-2507:09

Tabitha L. Frank’s Journey with Endosalpingiosis

2020-09-1909:39

Interview with Rare Disease Advocate: Dr. Shyamala Peesapati

2020-08-3020:53

Mackenzie Lea's Battle with Trigeminal Neuralgia

2020-08-2220:41

Gary M. Johnson's Journey with SCA2

2020-08-1412:37

Rare Disease Research

2020-08-0711:34

Introduction to Rare Diseases

2020-07-3107:37

Welcome to Once Upon a Blue Moon

2020-07-2101:44

00:00

Update + Rare Disease Day

Our Leaders: Pooja, Liesha, Anirudh, and Cayla!

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Update + Rare Disease Day

Our Leaders: Pooja, Liesha, Anirudh, and Cayla!

Update + Rare Disease Day