Trailer - Fly-ing Insights: Unraveling Rare Disorders with Tiny Wings
Update: 2023-11-04
Description
Will be talking with Ann and Steve Nguyen, sharing the touching story of their son, Emmett who was affected by PIGA-CDG. Will understand how Emmett's legacy continues to inspire and bring hope to many. We will also have Dr. Clement Chow whose cutting-edge research is unraveling the mysteries of different rare disorders.
For more information on congenital disorders of glycosylation please visit our sponsor at cdgcare.org.
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