DiscoverPWS UnitedEp45 Pulse 124: Scoliosis Awareness, Conference App, Medicaid Expansion Call to Action, Livestream
Ep45 Pulse 124: Scoliosis Awareness, Conference App, Medicaid Expansion Call to Action, Livestream

Ep45 Pulse 124: Scoliosis Awareness, Conference App, Medicaid Expansion Call to Action, Livestream

Update: 2025-06-10
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The latest in PWSA | USA events and PWS news in research, family support, and advocacy. 


24 Hour Crisis Line: 941-312-0400


Scoliosis Awareness - Prader-Willi Syndrome Association | USA


United in Hope Conference


Home - 2025 United in Hope PWS Conference


How-to-Download-the-2025-United-in-Hope-PWS-Conference-Mobile-App.pdf


2025 United in Hope Welcome Packet


2025Family-Agenda-2.pdf


2025ClinicalScientific-Agenda.pdf


2025ProfessionalProviders-Agenda.pdf


2025Adults-with-PWS-Agenda.pdf


50th Anniversary


PWSA Memory: 1990_Vol-XVI-N1-Jan-Feb-1990.pdf


Share your PWSA Memory: 50 Year Anniversary - Prader-Willi Syndrome Association | USA


Events


Prader Silly: A Night of Rare Laughs - Campaign


Fundraisers


Hunter Lens Golf Tournament - Campaign


Hummus, Tahini, and PWS Awareness - Prader-Willi Syndrome Association | USA


United We Brunch - Campaign


PWSA Fundraising Pages - Campaign


Spotlight on Hope


Spotlight on Hope: Ada Thrives and Shines - Prader-Willi Syndrome Association | USA


Share Your Story - Prader-Willi Syndrome Association | USA


Advocacy


Help Expand Disability Services for PWS – Share Your Story - Prader-Willi Syndrome Association | USA


Family Support


Adults with PWS Advisory Board Spotlight: Abbott Philson - Prader-Willi Syndrome Association | USA


Family Resource Program - Parents/Caregiver Focus Groups


Family Resource Program - Sibling Focus Groups


Recruitment – SibTime II -English - Influents Innovations


Ask Nurse Lynn: Osteoporosis, Calcium, Vitamin D - Prader-Willi Syndrome Association | USA


Submit your own non-emergency medical question: Ask Nurse Lynn - Prader-Willi Syndrome Association | USA


Research


Get to Know Aardvark Therapeutics Phase 3 HERO PWS Study


Home | Hero Trial


Prader-Willi Syndrome Clinical Scholarship Announcement - Prader-Willi Syndrome Association | USA


Request for Prader-Willi Syndrome Research Grant Applications - Prader-Willi Syndrome Association | USA


Announcements/Resource Spotlight


Voice of the Patient Report: VOP-Report-4.30_.pdf


PWS Externally-Led Patient-Focused Drug Development Meeting


 


Intro Music: https://www.bensound.com/; License certificate #2242442 

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Ep45 Pulse 124: Scoliosis Awareness, Conference App, Medicaid Expansion Call to Action, Livestream

Ep45 Pulse 124: Scoliosis Awareness, Conference App, Medicaid Expansion Call to Action, Livestream

PWSA | USA