DiscoverPWS UnitedEp61 Pulse 132: Gala Recap, DUR Boards, TREND Journey Prompts, Bullying Prevention Month
Ep61 Pulse 132: Gala Recap, DUR Boards, TREND Journey Prompts, Bullying Prevention Month

Ep61 Pulse 132: Gala Recap, DUR Boards, TREND Journey Prompts, Bullying Prevention Month

Update: 2025-10-07
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The latest in PWSA | USA events and PWS news in research, family support, and advocacy. 


24 Hour Crisis Line: 941-312-0400


Gala


Journey of Hope Gala Recap: Celebrating 50 Years of PWSA | USA - Prader-Willi Syndrome Association | USA


Tribute Video: Celebrating 50 Years of PWSA | USA!


PWSA | USA's Journey of Hope Gala Photo Gallery


PWSA Memory


1987_Vol-XIII-N4-Jul-Aug-1987.pdf


Share your PWSA Memory: 50 Year Anniversary - Prader-Willi Syndrome Association | USA


Events | Fundraisers


2nd Annual Dance Silly for Prader-Willi - Prader-Willi Syndrome Association | USA


PWSA Fundraising Pages - Campaign


Spotlight on Hope


Share Your Story - Prader-Willi Syndrome Association | USA


Advocacy


Calling Missouri PWS Families! - Prader-Willi Syndrome Association | USA


Calling Indiana PWS Families! - Prader-Willi Syndrome Association | USA


Understanding P&T Committees and DUR Boards - Prader-Willi Syndrome Association | USA


Family Support


Intervening with a Bully, One Family’s Experience - Prader-Willi Syndrome Association | USA


Ask Nurse Lynn: Stretch Marks with Estradiol - Prader-Willi Syndrome Association | USA


Submit your own non-emergency medical question: Ask Nurse Lynn - Prader-Willi Syndrome Association | USA


Research


TREND Community - Prader-Willi Syndrome Association | USA


2025-Whats-TRENDing-Birth-Stories-and-PWS.pdf


Acadia Shares Results of Phase 3 Carbetocin Trial: Primary Endpoint Not Met - Prader-Willi Syndrome Association | USA


Aardvark Therapeutics HERO Trial: U.S. Sites Now Open - Prader-Willi Syndrome Association | USA


www.heroforpws.com


HERO Informational Webinar Registration: Webinar Registration - Zoom


HERO Clinical Trial for ARD-101 Now Enrolling Open-Label Extension (OLE) - Prader-Willi Syndrome Association | USA


Prader-Willi Syndrome Clinical Scholarship Announcement - Prader-Willi Syndrome Association | USA


Request for Prader-Willi Syndrome Research Grant Applications


Announcements/Resource Spotlight


Therapeutic-Interventions-2011.pdf


Intro Music: https://www.bensound.com/  License certificate #2242442 

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Ep61 Pulse 132: Gala Recap, DUR Boards, TREND Journey Prompts, Bullying Prevention Month

Ep61 Pulse 132: Gala Recap, DUR Boards, TREND Journey Prompts, Bullying Prevention Month

PWSA | USA