Ep68 Pulse 135: Holiday Preparation, Prader Silly Recap, 2026 D.C. Fly-In, PWS and Diabetes, Research Spotlight
Description
The latest in PWSA | USA events and PWS news in advocacy, family support, and research.
24-Hour Crisis Line: (941) 312-0400 - Available 24/7, including Holidays.
Preparing for the Holidays Blogs/Resources:
Tips and Techniques for a Safe Holiday Season
Cousins at Christmas: Opening the Conversation of Your Child’s Special Needs
A Letter to Friends and Family
PWSA Memory:
September 1997 edition of The Gathered View
Spotlight on Hope:
2025 Angel Drive Campaign:
Hope in Action Video - Shaping the Future of PWS
Save the Date: Giving Tuesday is Tuesday, December 2, 2025 - DOUBLE your impact when you give to the Angel Drive on that date!
PWS Christmas Experience near PDX:
Email pwsaorwa@gmail.com by December 3, 2025 to RSVP.
Prader Silly:
Event Photo Gallery (Photo credit: Taylor Brown | @word.doc_brown)
Claus for a Cause:
Register for Claus for a Cause
Bid on Claus for a Cause Silent Auction Items
D.C. Fly-In - Applications for the 2026 D.C. Fly-In will open soon!
For questions, email advocacy@pwsausa.org.
To sponsor this event, email development@pwsausa.org.
Operation Holiday Cheer
Click Here to Submit an Application
Deadline to submit an application is Monday, December 1, 2025. Email info@pwsausa.org with any questions.
Prader-Willi Syndrome and Diabetes
Click Here to Read the Blog Article
¡Anuncio! Nuevo Grupo de Apoyo en Español
Ask Nurse Lynn
PWS and Aging Response Article
Submit Your Own Non-Emergency Question about PWS
TREND Community and PWS Connect on Discord
Join the conversation today! Interested? Email interested@trend.community and we’ll send you a private link to join PWS Connect on Discord!
Research Spotlight
Harmony Biosciences TEMPO PWS Clinical Trial
PWSA | USA Resource Spotlight
Intro Music: https://www.bensound.com/ License certificate #2242442
United States
