DiscoverPWS UnitedEp66 Pulse 134: Angel Drive Launch, Operation Holiday Cheer, Skin Picking, Self-Care, Gratitude
Ep66 Pulse 134: Angel Drive Launch, Operation Holiday Cheer, Skin Picking, Self-Care, Gratitude

Ep66 Pulse 134: Angel Drive Launch, Operation Holiday Cheer, Skin Picking, Self-Care, Gratitude

Update: 2025-11-11
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The latest in PWSA | USA events and PWS news in research, family support, and advocacy. 


24 Hour Crisis Line: 941-312-0400


Angel Drive


Angel Drive 2025 - Prader-Willi Syndrome Association | USA


Hope in Action: Adults with PWS Advisory Board Members Share the Importance of Self-Advocacy


PWSA Memory


1993_Vol-XVII-N5-Sept-Oct-1993.pdf


Share your PWSA Memory: 50 Year Anniversary - Prader-Willi Syndrome Association | USA


Events | Fundraisers


Claus for a Cause - Campaign


PWSA Fundraising Pages - Campaign


Spotlight on Hope


Spotlight on Hope: The Story of George - Prader-Willi Syndrome Association | USA


Share Your Story - Prader-Willi Syndrome Association | USA


Advocacy


Calling Iowa PWS Families for P&T Committee - Prader-Willi Syndrome Association | USA


Calling Alaska PWS Families - Prader-Willi Syndrome Association | USA


Understanding P&T Committees and DUR Boards - Prader-Willi Syndrome Association | USA


Wisconsin Families: We Need Your Voice to Support SB 203 - Prader-Willi Syndrome Association | USA


Family Support


Operation Holiday Cheer Returns to Support PWS Families in 2025 - Prader-Willi Syndrome Association | USA


Respite & Relationship: PWS Moms’ Hiking Weekends - Prader-Willi Syndrome Association | USA


Community Collectives: Creating Support for Caregivers - Prader-Willi Syndrome Association | USA


Ask Nurse Lynn: Preventing and Treating Constipation - Prader-Willi Syndrome Association | USA


Submit your own non-emergency medical question: Ask Nurse Lynn - Prader-Willi Syndrome Association | USA


Research


2025_11_03_Whats-TRENDing-Community-Themes-and-PWS.pdf


TREND Community - Prader-Willi Syndrome Association | USA


Aardvark Therapeutics' HERO Clinical Trial Informational Webinar - October 15, 2025


Prader-Willi Syndrome Clinical Scholarship Announcement - Prader-Willi Syndrome Association | USA


Request for Prader-Willi Syndrome Research Grant Applications


Announcements/Resource Spotlight


Strategies, Interventions, and Routines for the Prevention or Mitigation of Skin Picking in Individuals with Prader-Willi Syndrome


 


Intro Music: https://www.bensound.com/  License certificate #2242442 

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Ep66 Pulse 134: Angel Drive Launch, Operation Holiday Cheer, Skin Picking, Self-Care, Gratitude

Ep66 Pulse 134: Angel Drive Launch, Operation Holiday Cheer, Skin Picking, Self-Care, Gratitude

PWSA | USA