DiscoverPWS UnitedEp59 Pulse 131: Virtual Gala Auction, Care Until Cure, Give Kids a Chance Act, NICU and Newborns
Ep59 Pulse 131: Virtual Gala Auction, Care Until Cure, Give Kids a Chance Act, NICU and Newborns

Ep59 Pulse 131: Virtual Gala Auction, Care Until Cure, Give Kids a Chance Act, NICU and Newborns

Update: 2025-09-23
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The latest in PWSA | USA events and PWS news in research, family support, and advocacy. 


24 Hour Crisis Line: 941-312-0400


Gala Live Auction


PWSA | USA's 50th Anniversary: Journey of Hope Gala AUCTION


50th-Gala-How-to-Bid-on-the-Silent-Auction.pdf


PWSA Memory


1982_Vol-VIII-N5-Sept-Oct-1982.pdf


Share your PWSA Memory: 50 Year Anniversary - Prader-Willi Syndrome Association | USA


Events


PWSA | USA's 50th Anniversary: Journey of Hope Gala - Campaign


Fundraisers


2nd Annual Dance Silly for Prader-Willi - Prader-Willi Syndrome Association | USA


Cocktails for a Cause- A Night for Prader-Willi Syndrome - Campaign


Answers for Audrey - Campaign


Prader-Silly: A Night of Rare Laughs - Prader-Willi Syndrome Association | USA


PWSA Fundraising Pages - Campaign


Spotlight on Hope


Rising Star in the PWS Community and Beyond - Prader-Willi Syndrome Association | USA


Share Your Story - Prader-Willi Syndrome Association | USA


Advocacy


2024-Rare-Roadmap_Rare-Research.pdf


Global PWS Registry - Prader-Willi Syndrome Association | USA


TREND Community - Prader-Willi Syndrome Association | USA


Help Expand Disability Services for PWS – Share Your Story - Prader-Willi Syndrome Association | USA


Family Support


Adults with PWS: Living a Happy, Healthy Life - Prader-Willi Syndrome Association | USA


C15 Foundation – Where Unlimited Potential Can Grow and Thrive


Affecting Sleep with PWS - Prader-Willi Syndrome Association | USA


Submit your own non-emergency medical question: Ask Nurse Lynn - Prader-Willi Syndrome Association | USA


Research


Parent perceptions of genetic diagnosis in the inpatient setting in the neonatal intensive care unit (NICU), pediatric intensive care unit (PICU), and cardiac care unit (CCU)


Aardvark Therapeutics HERO Trial: U.S. Sites Now Open - Prader-Willi Syndrome Association | USA


Seattle, Washington

Seattle Children's Hospital

Contact: Isabella Niu, MD / Stephanie Purdy

Phone: (206) 987-2640

Email: stephanie.purdy@seattlechildrens.org


www.heroforpws.com


Prader-Willi Syndrome Clinical Scholarship Announcement - Prader-Willi Syndrome Association | USA


Request for Prader-Willi Syndrome Research Grant Applications


Announcements/Resource Spotlight


NICU-Booklet-Rebranded-2022.pdf


Intro Music: https://www.bensound.com/  License certificate #2242442 

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Ep59 Pulse 131: Virtual Gala Auction, Care Until Cure, Give Kids a Chance Act, NICU and Newborns

Ep59 Pulse 131: Virtual Gala Auction, Care Until Cure, Give Kids a Chance Act, NICU and Newborns

PWSA | USA