Ep52 Pulse 128: Make-A-Will Month, Big Advocacy Win, Dance Silly for Prader-Willi, BOSS Program Update, Harmony Biosciences Webinar
Description
The latest in PWSA | USA events and PWS news in research, family support, and advocacy.
24 Hour Crisis Line: 941-312-0400
Make-A-Will Month
PWSA Memory
Share your PWSA Memory: 50 Year Anniversary - Prader-Willi Syndrome Association | USA
Events
PWSAUSA 50th Anniversary: Journey of Hope Celebration - Campaign
Fundraisers
2nd Annual Dance Silly for Prader-Willi - Prader-Willi Syndrome Association | USA
Contact email: mhampton0933@gmail.com
16th Annual Hunter Lens Golf Tournament - Prader-Willi Syndrome Association | USA
PWSA Fundraising Pages - Campaign
Spotlight on Hope
Share Your Story - Prader-Willi Syndrome Association | USA
Advocacy
Exciting News! PWS Included in FY26 Department of Defense Appropriations Bill for Medical Research
Help Expand Disability Services for PWS – Share Your Story - Prader-Willi Syndrome Association | USA
Family Support
Understanding Gastric Motility and Gastroparesis in PWS - Prader-Willi Syndrome Association | USA
Building Our Social Skills (BOSS) Program Begins Again - Prader-Willi Syndrome Association | USA
Ask Nurse Lynn: Leptin and Hyperphagia
Submit your own non-emergency medical question: Ask Nurse Lynn - Prader-Willi Syndrome Association | USA
Research
Harmony Biosciences TEMPO Trial Webinar: Webinar Registration - Zoom
Aardvark Therapeutics HERO Trial: U.S. Sites Now Open - Prader-Willi Syndrome Association | USA
Announcements/Resource Spotlight
Qualifying for Social Security Disability with PWS
Intro Music: https://www.bensound.com/; License certificate #2242442
United States
