Fibromuscular Dysplasia: How Social Media Is Changing the Landscape of Rare Diseases
Update: 2024-05-01
Description
On this episode of Inside the Texas Heart Studio, Dr. Stephanie Coulter sits down with Dr. Jeffrey Olin to discuss, "Fibromuscular Dysplasia: The Rare Disease That Isn’t."
This episode explores how social media has transformed the way patients with rare diseases, like fibromuscular dysplasia, find specialists and connect with others facing similar challenges. Dr. Jeffrey Olin, is the Director of Vascular Medicine and the Vascular Diagnostic Laboratory at the Icahn School of Medicine at Mount Sinai.
Dr. Olin discusses:
- His journey into researching fibromuscular dysplasia, a rare vascular disease.
- The importance of curiosity and perseverance in medical practice.
- The power of social media in raising awareness and empowering patients.
- How social media has transformed patient referrals for uncommon diseases.
- The need for responsible social media use by medical professionals.
- The broader impact of research on fibromuscular dysplasia on understanding other women's health issues.
For more information on the FMD Registry visit texasheart.org/fmd
🔗Watch the Studio Interview on Texas Heart TV
🔗 Watch Dr. Olin’s Grand Rounds
Watch On Demand Videos on Texas Heart TV
Visit Our Website: texasheart.org
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