Fibromuscular Dysplasia (FMD) Registry: Transforming Rare Disease Research with Data
Update: 2024-04-23
Description
On this episode of Inside the Texas Heart Studio, Dr. Stephanie Coulter sits down with Dr. Daniella Kadian-Dodov, a vascular medicine specialist at Mount Sinai, to discuss Fibromuscular Dysplasia (FMD).
The conversation dives deeper than the typical presentation of FMD, which is often characterized by the "string-of-beads" appearance on angiography. Dr. Kadian-Dodov sheds light on the evolving understanding of this condition, including:
- How the phenotype of FMD has broadened to encompass a wider range of presentations beyond young women with hypertension.
- The association of FMD with other vascular diseases like SCAD (spontaneous coronary artery dissection) and aneurysms.
- The importance of registries like the IRAD Registry and the FMD Registry at Mount Sinai in improving our understanding and treatment of FMD.
- The challenges of obtaining long-term prognostic data due to the relatively young age of most FMD patients.
For more information on the FMD Registry visit texasheart.org/fmd
🔗Watch the Studio Interview on Texas Heart TV
🔗 Watch Dr. Kadian-Dodov’s Grand RoundsÂ
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