Managing Christmas Challenges for Neurodivergent Families
Description
In this week's episode of The Autism Mums Podcast we're talking about something that many families find really tough, the Christmas season. It's a time that's meant to feel magical, but for many of our autistic children, it can actually be really overwhelming, unpredictable, and stressful.
Key Takeaways
Understanding Christmas Overwhelm: Many autistic children find the Christmas season stressful due to changes in routine and expectations.
Addressing Pre-Christmas Challenges: Difficulties can arise well before Christmas Day, with alterations in school activities and the build-up of holiday expectations.
Communication and Preparation: Clear communication about what to expect can help reduce anxiety in children. Discussing plans with them beforehand is crucial.
Adjusting Traditions: Families may wish to consider adapting their traditions to better suit their child's needs, such as avoiding large gatherings or adjusting meal times.
Managing Social Expectations: The pressure to participate in Christmas events, such as school plays and gatherings, can cause significant distress for neurodivergent children.
Sensory Sensitivities: Decorations and festive environments can be overwhelming, emphasising the need for a personalised approach to celebrations.
Flexibility on Christmas Day: It can be helpful to allow for breaks and personal space on Christmas Day, adapting activities to match children's comfort levels.
Creating a Supportive Environment: Setting up a calm and understanding atmosphere at home can make the season more enjoyable for neurodivergent family members.
Encouraging Open Dialogue: Encouraging children to express their needs, such as using visual aids to communicate comfort levels, can help.
Finding Joy in Simplicity: Embracing a less traditional Christmas that meets individual family needs can be just as fulfilling as adhering to societal expectations.
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Transcript
Victoria
Bennion: [00:00:00 ] Today
we're talking about something that many families find really tough.
It's the Christmas season. It's a time that's meant to feel magical,
but for many of our autistic children, it can actually be really
overwhelming, unpredictable, and stressful.
Natalie
Tealdi: We're gonna talk through some of the common
challenges that come long before Christmas Day. What happens on the
day itself, and what we've learned works for our families. Hopefully
it helps you feel a little more understood and a little more
supported this year.
Victoria
Bennion: For many of our children, the struggles start way
before Christmas day when everything starts to change. Routines are
different expectations, the look and the feel of a school. For one of
my children, these struggles were really apparent from preschool age
and they had a lot of trauma to work through in subsequent years of,
it sounds awful, doesn't it?
But the trauma from Christmas,
from doing Christmas at school every year.
Natalie
Tealdi: I know it's something that you think will be
really fun and I know that's where it comes from. It comes from a
[00:01:00 ] place of yeah, let's be a bit
more relaxed and make it really fun for the kids in a build up to
Christmas. But actually for some children it's just horrific.
Victoria
Bennion: Absolutely. And for some it is fun. I think worth
acknowledging that, but for our children, it's really not fun. I
remember there was an instance we went into school and they were
completely off timetable and. He was having so much anxiety. And I
said to the TA on the door, can you tell him what to expect from the
day? What have you got planned? And she said, oh, you know, lots of
fun things. And I thought we might as well just go back to the car
right now. He was horrified.
Natalie
Tealdi: Yeah. It's that not knowing what's happening,
isn't it? And everything being different and looking different.
Victoria
Bennion: The decorations there was one year the PTA did
this lovely winter wonderland outside the school and it was a
surprise to the children as they came in and we walked up the
pavement and there's all these oohs and ahs and there was a snow
machine and people dressed [00:02:00 ] up
and my son was completely white. Really, really anxious. I think he
made it into school, but he couldn't speak. He was just absolutely
horrified by it.
Natalie
Tealdi: Yeah, what used to upset my son was the Christmas
jumper days, so not wearing a school uniform that really upset him
because, you know, when we go to school we wear uniform and that's
just how it is and well, why are they changing it? And that creates
anxiety and uncertainty and it is things that are supposed to be fun
and that are fun for a lot of people, but not others.
Victoria
Bennion: Yeah, and actually when, I didn't know back then
that. Change had such an impact. That was in my oblivious era. But
actually when you think about it, there's so much change, isn't
there? Another pressure that I know my son felt was the Christmas
plays every year, and that's when I noticed it at preschool. It was
the first play and all the family were coming in. It was gonna be in
the village hall, and. I know my timekeeping [00:03:00 ]
isn't always the most amazing,
Natalie
Tealdi: No comment.
Victoria
Bennion: No come on. We were. We were not early, put it
that way. We were not early. But the reason we went early was because
he kept taking off his shepherd's costume. I kept putting it back on.
He kept taking it off and in the end I took him to the village hall
and took him to the room where all the children were and handed them
the costume. And I said, I can't. Get him to wear it. It wasn't that
he protested really loudly, he just kept taking it off. Looking back,
I feel so bad about that, that whole event, but I remember taking my
place in the audience.
Were you there? Did you come?
No, He must have been working.
So it was the wider family and, he was holding onto one of the
preschool workers' hands. She was lovely with him and he was wearing
his costume and they led them round and they sat up on the stage and
I watched him just sit on the stage frozen. He didn't join in. He was
supposed to do a dance. He didn't get up and do the [00:04:00 ]
dance and. I've just felt so awful for him. And in later years when I
knew that how much of a struggle that was for him, I looked back with
even more horror that he'd had to go through that. In fact, one of
the mums had a recording of it that I saw a couple of years ago, and
watching it back, I actually had to leave.
It was from a good place, but
looking at, oh, how cute are they? And all I could see was. Just the
terror. The terror in his face, and then the guilt that he'd gone
through that and I hadn't known.
Natalie
Tealdi: I think when you know, years later, things look
very different in their. I know I've looked back at videos and
thought, oh my gosh, he's really struggling there, and I had no idea
at the time. I didn't understand.
Victoria
Bennion: Yeah.
Natalie
Tealdi: But also I think with those plays, it's something
that you really look forward to as a mom and a parent.
Like just seeing them all cute
and dressed up. And it's something that you really look forward to
seeing, isn't it? And I don't think [00:05:00 ]
we've ever had a successful one
Victoria
Bennion: No.
Natalie
Tealdi: with either of mine.
Victoria
Bennion: No, I don't. I'm not sure that we have two. I
think the one in reception, I seem to remember they dressed up as
animals and that. Was the only one that he participated in. There
wasn't a stage, so maybe that was why. But they were down on the
floor just i























